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Chronic Fatigue - consider chronic lyme disease. Symptoms overlap with many other problems including fibromyalgia. Have you been anywhere you could have been bitten by a tick. Typical infectious disease doctors will not acknowledge or treat "chronic" lyme disease. Their tests and treatments are inadequate, unless done in the first few months after being bitten. You have to see a doctor who is willing to consider the possibility of "chronic" lyme disease and can prescribe lab tests that investigate further the possibilities.

Going paloe no grains and dairy of any kind and a good b multi thornes research is the best I order off I herb . You most prob have a leaky gut problems. ? Infection bad bugs or damage us I g antibiotics nsaids/ibupropen meds. Look up Dr Amy Myers and Dr perlmutter on Google great I do on internet and great books too :) good luck

hi, I appreciate everyone sharing, so here goes. I also highly recommend Dr Teitlelbaum's book mentioned above and per treating my underlying condition of EBV (epstein Barr virus), the antivirals make a huge difference for me. Nutritionally, whole food vitamins (every other day) seem to help and lypospheric vitamin c (daily, 2x packets). With lymph node pain, I drink water with a drop of lemon essential oil in it morning and night until they calm down. Meditation definitely. best...

I have been on many medications prescribed by my rheumatologist and none have really helped. I did better incorporating healthy chocolate every day. I have been doing that for five years and notice a difference If I stop.

Ht DS-5446 What diet are you following and has it helped? There are so many out there it is confusing, And iit is so diffulcult to cook when you are so tired

Try low dose naltrexone. There are studies on it and it works for a lot of autoimmune conditions and specifically CFS

http://www.knowyourgenetics.com You can enter your methylation SNPs here and get a Dr Yasko analysis and supplement list specifically for your genetics. You don't have to buy her supplements to use it. I checked the inactive content of some of her supplements and would not be able to tolerate them as I have Mast Cell Disease. I get supplements from Bulk Powders or http://www.biotechpharmacal.com, they are all but unadulterared.

Thanks for that link AW-6152. I have only just done my variance report so am new to all this but interesting to see those connected with cfs.

Thanks for the links guys. UX-6175 I am learning that I can't just go by the food and supplement recommendations that Nutrahacker gives because the App has no clue about my other meds and lab levels which play a big role in what I should and should not take. I was chatting with some frustrated users who had run into problems with following recommendations in that App but I'm liking that book though. My library's getting it in for me. I'll see what my Dr says about getting a sleep study and see how that goes.

Fatigued to Fantastic, by Dr Teitelbaum, has loads of info about tackling CFIDS/me and fibro.
I'm now taking ribose, 3 tsp a day (hours apart) in beverages, and that's helped me some w concentration and fatigue. Mostly for those w mito issues.
A sleep study is worth pursuing, if you haven't. I'm doing better with the Cpap, and my sleep doc also helped me in other ways.

I ran my data thrum the nutrahacker.com site and got more ideas for nutritional approaches: foods and supplements to avoid/ to in lude.
It still takes some figuring out -- only so much they can do, legally, and in some cases one gene says do this, another says do that, right answer for you right now may depend on symptoms. (Not all genes are active at all times.)
(There is a free version of Nutrahacker that doesn't give info on as many of the SNPs they check, but does tell how many of them you had the risk allele, so that is enough info to decide if it is worth paying to see more.)
GeneticGenie provides loads of great info, but can be harder to use to develop an action plan.

If like me you have systemic symptoms in addition to CFS, I can help out. There are links between chronic fatigue and Mast Cell Activation Disease and the Methylation Cycle. You could start with: www.geneticgenie.org
This article gives an overview of MCAD http://medcraveonline.com/MOJI/MOJI-02-00032.pdf

Dl-7336 Thank you for this explanation here. As I go along, I know that
I'll learn more about the SNP's and other coding.
Meanwhile, have either of you found things that are important in helping you with
your CFS?

DS-5446, you seem to be doing all the right things :) I hope they're working for you.

SNPs or Single Nucleotide Polymorphisms are mutations (or copying errors) at specific locations in a gene. Genome - health association studies have identified several thousand of them that on their own or in combination with some others, are associated with diseases.

https://www.23andme.com/gen101/snps/
http://ghr.nlm.nih.gov/handbook/genomicresearch/snp

Hello AW-6152, Thank you for your post. Yes. I'm brand new here. I am
someone living with chronic fatigue. I thought there'd be more posts but
maybe others will join in. Either way, I'm not real computer savvy. For
starters, I don't know what SNP's are. So the link and download is something
I'm not ready for right now. Also, my doctor hasn't gone over the results
with me. I did it to find about about methylation pathways.
What has helped me are many things. I've dealt with this illness for
probably 15 years or more. More intently in the past 8. Since I'm
retired, I'm able to make healthier choices than I was before. So pacing
myself is the major change. Getting plenty of rest helps the most.
Talking and learning from others in a support group has been a major
help. Following a specific diet. Managing stress through meditation
or relaxation. Having a spiritual practice. Taking supplements and
finding an alternative doctor to work with. The list goes on, but these
are starters. How's it going for you?